“I can’t help but feel that some imbalance in the world first caused neuro-atypical people to be needed and then brought us into being,” ~ Naoki Higashida
Naoki Higashida is profoundly autistic. He is largely non-verbal, and he has typical autistic traits – he jumps, he has meltdowns, and he finds it difficult to make eye contact. He is also the most translated Japanese author after Haruki Murakami.
Photo by Masaaki Komori
His first book The Reason I Jump was one of the most widely read books by parents with children on the autism spectrum. The book helped break many myths about autism and provided pathbreaking insights into the human brain. For instance, the inability to make friends is not because they don’t want to, but because they worry about the sort of impression they are going to make. However, nature is their best friend because autistic people, like nature, are non-judgmental.
In his latest book, Fall Down 7 Times, Get Up 8, one of Higashida’s most striking ideas is that there is a specific reason why people with autism and other special needs exist. “I can’t help but feel that some imbalance in the world first caused neuro-atypical people to be needed and then brought us into being,” he writes. “Those who are determined to live with us and not give up on us are deeply compassionate people, and this kind of compassion must be a key to humanity’s long-term survival.” This ability of special needs people to fundamentally raise human consciousness through compassion is what I believe is the real impact of people with disabilities.
Ranked a great virtue in numerous philosophies, compassion is considered in almost all the major religious traditions as among the greatest of virtues. The word “compassion” has often been wrongly defined as “pity for someone else” (sympathetic pity and concern for the sufferings or misfortunes of others). The real definition of compassion is the response to the suffering of others that motivates a desire to help them. It is a combination of empathy and suffering (compassion is thus related in origin, form, and meaning to the English noun “patient” – the one who suffers).
People with autism and other disabilities may seem like an aberration but they invite us to a place of greater empathy, compassion, and humanness.
Photo by Nathan Anderson
There are additional positive aspects of people with disabilities to consider. Professor Rob Austin and my friend Thorkil Sonne, in their landmark Harvard Business Review article “The Case for Hiring Outlier Employees,” states that the perspectives provided by autistic people can be very important to innovation-based businesses. Another insight is that if we can design solutions for the outliers, then it would work for everyone else. For example, subtitles were first introduced so that hearing-impaired people can read the text; this is now used by everyone, even those who know the language, so that they don’t miss any information lost due to delay in understanding specific accents or dialects used in the dialogue/narration!
People with autism and other disabilities may seem like an aberration but they invite us to a place of greater empathy, compassion, and humanness. They help us see the world with a different lens. When the world is becoming more and more connected and less and less human, this seemingly disconnected group of people makes us more and more human.
Photo by Jeremy Bishop
Hearing the visions of people with the same or similar thoughts as our own puts us in an echo chamber, and getting out of it requires hearing people with thoughts that are different from our own. People with autism expose us to thoughts that are very different from those that we are familiar with, and they force us to think differently, offering us opportunities to come together in compassion.
Inclusion will be the next big revolution, and it will be our biggest failure if we did not recognize it.
Author Yuval Harari in his book, Homo Deus, talks about a need for a catastrophe or a natural calamity for humans to come together. Outliers, like the people with disability, are a reminder for humans to become more human. If everyone looked the same and did the same things, humans would not have made progress — hence the need to embrace people with disabilities in our society. Berkeley Professor John Danner once mentioned to me, “Inclusion will be the next big revolution, and it will be our biggest failure if we did not recognize it.”
Unfortunately, the language we use when we deal with people with disabilities is that of deficit. If we keep saying that people with disabilities have a problem, it becomes a problem. The need of the hour is to change that narrative. We need to realize that being typical is not the holy grail. We need diversity, and in many instances, we are heading towards a better world because of diversity in people.
In my own personal journey of raising a child with autism, I have had a fast track in enlightenment. Through my son, I have a front row seat in the evolution of our species. I have started to see that my son is the solution to all the problems and that he is not the problem. I wish to live to see a day when an announcement/diagnosis of the news of a differently-abled person is not seen as a death sentence but accepted with equanimity!
I have been often asked, how can you prove that you have been successful in changing mindsets? My answer is, “the mindset I wish to change is my own.”
The author with his son, Vivaan
One of the most challenging tasks in the inclusion space is bringing a change in mindsets. I have been often asked, how can you prove that you have been successful in changing mindsets? My answer is, “The mindset I wish to change is my own.” This reminds me of Amos Tversky’s famous quote, “It is sometimes easier to make the world a better place than to prove you have made the world a better place.”
In my inclusion journey, I have attempted to move from sympathy to empathy to compassion. The journey to compassion needs deeper inner transformation and a lot of patience and perseverance. As my friend and founder of Service Space, Nipun Mehta tells me, “There is no exit strategy. You just need to keep going – with compassion!”
Dear VR, what a beautiful, heart-warming essay! I have a 9 year old great-niece with Downs Syndrome and she also was diagnosed with leukemia at age 4 and went through 2 1/2 years of chemo. She is a beautiful, caring child and thriving. The gift she is to her family and to the world cannot be expressed in words. Oh, people with so called disabilities have SO much to teach us! VR, thank-you so much for your sharing!!! God bless you, your dear son and all your family.
Peace and love, Sheila?
Dear VR Ferose
This is a brilliant article! Thank You very much for composing and sharing it here.
And by “brilliant” I don’t just mean “well done” I mean to say that the light of Spirit, compassion, truly shines out of every aspect conveyed by its words.
What i hear and see foremost is that “there is NO separation between Human beings anywhere and at any time” … But on the physical ( 3 dimensional ) plane of existence. And it is time that humanity realizes that the most important reason we Human Being have to experience a “physical” existence ( disabilities, cultural, social etc etc ) is so that we understand and appreciate the fullness and True Being-ness ( in the Psychical and Noetical and Noetic ) which is already here within us!
Be Well Be Present
EdS .
Beautiful reflection, Ed. Thank-you for sharing!
Peace, Sheila ?
I completely resonate with the experience you share here of your son as teacher and change agent. I too have a severely autistic son. It is a massively humbling but illuminating experience. Despite all the challenges (his and ours as we learn to live together) he has an integrity, joyfulness and depth that is hard to put into words. He often provides a clear but not always comfortable mirror to my own state of mind and shows me what I need to work on. He does this with virtually no language. In a world where words are so often misused and with such harmful effects he is teaching me to open to new ways of connecting. Thank you so much for sharing this.
Dear Annie, thank-you for sharing about your experience with your autistic son. It is so touching! God bless you, Annie and all your family.
With love, Sheila ?